Capsizing in the Storms…

Capsizing in the Storms…

We had a storm last night. We’ve had worse. Tornadoes, even. But last night’s winds were brutal, and we had quite a lot of rain as well. I surveyed the situation in the light of day and made a little video showing what was what. …

Replenishment Mode is What Keeps Me Going

Replenishment Mode is What Keeps Me Going

I had promised to give you a “part two” of the “modes” that I experience on the regular as a person with chronic health/pain, and mental health issues. I will say that it’s been hard to make myself sit and write this, mostly because my …

So, I had a little brain surgery…

So, I had a little brain surgery…

I have just been through a VERY difficult couple of weeks. I had something called a Middle Fossa Craniotomy a couple of weeks ago. It was to repair a spontaneous CSF (cerebral spinal fluid) leak (one that is not caused by accident or injury, etc… …

Medical Updates… Surgery Looms…

Medical Updates… Surgery Looms…

Hi all, yes, once again, it’s been awhile. A little over a month… ugh! I can make no excuses other than that I have felt like absolute rubbish. I’ve had gut problems… ongoing… so I underwent a combination endoscopy/colonoscopy on Tuesday of this week. It …

Seeking, Finding, and Embracing Gratitude within the Chaotic Mess…

Seeking, Finding, and Embracing Gratitude within the Chaotic Mess…

I wish I could lead a medically drama-free life. I wish I were not ill. I wish I were not in pain all the time. I wish my fragile mental health would allow me to process things like pain, disability, adversity, and inaccessibility without crippling …

Current Situation…

Current Situation…

I have a lot to say, but I lack the ability to say it at the moment. I am currently dealing with a massive autoimmune flare, likely brought on by a kidney infection. I’ve also been simultaneously battling a marathon of migraines. I’ve been spending …

Scary Health Stuff, and Catching Up

Scary Health Stuff, and Catching Up

Hi everyone, It’s been a bit since I have posted here, and that’s not for lack of wanting to, it’s simply down to my health having been quite the challenge of late. I am doing my best to rally, if possible, and trying to hold …

In The Floor at 1:00 AM

In The Floor at 1:00 AM

In a flare. Horrible back and neck pain. Pain meds are not touching it. What do I do? Crawl into the floor on a yoga mat at nearly 1:00 AM to do some gentle stretching and “tummy time” in an attempt to get SOME sort …